Living with PBC: How to Stay Active and Healthy While Managing Symptoms

Medically reviewed by John Sammis, D.O.
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6 min read

Primary biliary cholangitis (PBC) is a chronic autoimmune disease that affects the bile ducts in the liver, leading to inflammation and progressive liver damage. For individuals living with PBC, managing symptoms like fatigue, itching (pruritus), joint pain, and digestive issues can make it challenging to maintain an active and healthy lifestyle. However, staying physically active and making healthy lifestyle choices can improve overall well-being and may even help alleviate some symptoms.

While there’s no cure for PBC, taking proactive steps to manage the disease through lifestyle changes can make a big difference. Here’s how you can stay active and healthy while managing the symptoms of PBC.

Prioritize Physical Activity

Staying physically active is an essential part of living a healthy lifestyle with PBC. Regular exercise can help maintain muscle strength, improve energy levels, and enhance mood. However, it’s important to tailor your physical activity to your body’s needs and limitations, as overexertion can lead to increased fatigue.

Start Slowly and Build Gradually

Begin with low-impact exercises such as walking, swimming, or cycling, which are gentle on your joints and muscles. Start with short sessions of 10 to 15 minutes a few times a week, and gradually increase the duration and intensity as your endurance improves. Yoga and Pilates are also excellent options, as they help improve flexibility, balance, and muscle strength while promoting relaxation.

If you experience extreme fatigue, adjust your routine to include more rest days or lighter activities such as stretching. Listening to your body is key when managing both exercise and PBC symptoms.

Stretching and Flexibility

Incorporating stretching exercises into your routine can help alleviate joint pain and stiffness, which are common symptoms of PBC. Gentle stretching before and after exercise can improve flexibility and prevent injury. Yoga, in particular, offers a combination of stretching and deep breathing that can help reduce tension and promote relaxation.

Maintain a Balanced, Nutritious Diet

Diet plays a crucial role in supporting liver health and managing the symptoms of PBC. Eating a well-balanced, nutritious diet can help improve energy levels, reduce inflammation, and support overall liver function.

Focus on Whole, Nutrient-Dense Foods

Aim to consume a diet rich in fruits, vegetables, whole grains, lean proteins, and healthy fats such as those found in nuts, seeds, and fish. These foods provide essential nutrients that support liver function and overall health. Leafy greens, berries, and cruciferous vegetables like broccoli and cauliflower are rich in antioxidants, which can help reduce inflammation in the body.

Avoid Processed Foods and Sugary Drinks

Processed foods, refined sugars, and trans fats can contribute to inflammation and fatigue. Try to limit your intake of processed snacks, sugary beverages, and fried foods. Instead, opt for homemade meals using fresh, whole ingredients that nourish your body and provide sustained energy.

Stay Hydrated

Proper hydration is essential for liver health and overall well-being. Make sure to drink plenty of water throughout the day. Dehydration can contribute to feelings of fatigue, so staying well-hydrated can help improve energy levels and support healthy liver function.

Manage Stress and Mental Health

Living with PBC can be emotionally challenging, especially when managing symptoms like fatigue and discomfort. Managing stress is an important part of maintaining mental and physical health. Chronic stress can exacerbate symptoms, including fatigue and pruritus, making it more difficult to manage the disease.

Practice Relaxation Techniques

Incorporating relaxation techniques such as deep breathing, mindfulness meditation, and progressive muscle relaxation can help manage stress and improve emotional well-being. These techniques can help calm the mind and body, reducing tension and anxiety. Setting aside time each day to practice mindfulness or engage in calming activities such as reading, journaling, or listening to music can also help reduce stress.

Stay Connected with Support Networks

Living with a chronic illness can sometimes feel isolating. It’s important to stay connected with friends, family, and support groups. Sharing your experiences and concerns with others who understand what you’re going through can provide valuable emotional support. You may also consider joining a PBC support group, either online or in person, to connect with others who are managing the same condition.

Manage Symptoms with Self-Care Strategies

In addition to staying active and maintaining a healthy diet, certain self-care strategies can help you manage specific symptoms of PBC, such as fatigue and itching.

Combatting Fatigue

Fatigue is one of the most common and debilitating symptoms of PBC. To combat fatigue, prioritize rest and ensure you’re getting quality sleep each night. Establish a regular sleep routine by going to bed and waking up at the same time each day. Creating a calming pre-sleep routine—such as avoiding screens, reading, or practicing relaxation exercises—can help improve sleep quality.

Energy conservation techniques are also helpful. This involves pacing yourself throughout the day, taking breaks between activities, and setting realistic goals for what you can accomplish in a day. Recognize when you need to rest, and don’t push yourself too hard.

Managing Itching (Pruritus)

Itching is another common symptom of PBC. Taking cool baths, using moisturizers, and wearing loose, comfortable clothing can help alleviate itching. Avoiding hot showers and harsh soaps may also reduce skin irritation. If itching becomes severe, consult your healthcare provider for recommendations on additional treatments or medications.

Work Closely with Your Healthcare Provider

While lifestyle changes are crucial in managing PBC, they are not a substitute for medical treatment. Regular monitoring and working closely with your healthcare provider are essential to managing PBC effectively. Make sure to attend regular check-ups, discuss any changes in your symptoms, and stay informed about any new developments in treatment options. Together with your healthcare team, you can develop a comprehensive plan to manage your symptoms and maintain a healthy, active lifestyle.

Conclusion

Living with PBC can present challenges, but with the right approach, it’s possible to lead an active and healthy life while managing symptoms. By incorporating regular physical activity, maintaining a balanced diet, managing stress, and practicing self-care, you can improve your overall well-being and better manage the effects of PBC. Always work closely with your healthcare provider to ensure that you are receiving the best possible care and treatment for your condition.